Introducing ICEinfo

ICE TEAMWelcome to ICEinfo!  ICEinfo enables everyone to share mission-critical IN CASE OF EMERGENCY information where, when and how it’s needed most.

IN CASE OF EMERGENCY, who should be contacted?  What important medical information should be shared?  Are there conditions, contra-indications or advanced directives your caregivers should be aware of?

ICEinfo creates, aggregates, communicates and celebrates just such information in easily accessible and user-friendly ways, online and off.

The brainchild of social entrepreneur Wendy Dubit (pictured above, center, with her medical team), ICEinfo provides a new platform, program and awareness campaign that:

  • AGGREGATES the best of ICE, File of Life, Vial of Life, Medical Alert, Lifeline, Electronic Medical Records, Electronic Health Records and In Case of Emergency information and applications for wrists, refrigerators, home, wallets, cars, phones, computers, first responders, health institutions and more.
  • CREATES a cohesive, open platform and an ICEinfo Registry that simplifies, unifies and amplifies pertinent information and that includes tools, templates, content, community and commerce.
  • COMMUNICATES about and EDUCATES on the importance of ICEinfo to key stakeholders through trainings, outreach programs and trans-media awareness campaigns.
  • FACILITATES widespread, uniform adoption.
  • EVALUATES and tracks efficacy of use, rates of adoption and other indicators.
  • CELEBRATES milestones met and SUCCESS — on which so many saved and improved lives rests!

ICEinfo is in initial concept and team-building phase.  We are seeking talent, technology, start-up funding and support, and partners for our pilot and ongoing programs.

For further information, please contact:

Wendy Dubit, Founder

917.334.6925 * wendy@iceinfo.org * iceinfo.org

ICEinfo Registry

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ICEinfo.org is now in pilot production on an In Case of Emergency Information Registry that will allow for the effective sharing of mission-critical emergency information between patients, caregivers, first responders, medical and hospital personnel.

For such, we are in the process of partnering with such agencies and entities as MCRFS: Montgomery County (Maryland) Fire and Rescue Service, File of Life, Vial of LifeICE Blue Button and others.

Meantime, as an example, the remainder of this page serves as the ICEinfo registry for founder Wendy Dubit and her UnderCovers agent, UnderWoman.

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Wendy Dubit (WD) and her UnderCovers agent UnderWoman (UW) always carry and often wear their ! Medical Alert Card ! which proclaims:

“We have myasthenia gravis, a disease that can make us so weak that we may have difficulty standing or speaking clearly.  In addition, we may have drooping eyelids, double vision, and even difficulty breathing.  Sometimes these symptoms are mistaken for intoxication.

If we appear to need help, please contact our physician or hospital immediately.”

While the “mistaken for intoxication” part makes some folks smile, in fact it is no laughing matter.  Because myasthenia gravis is rare, myasthenic crises can easily be mistaken for intoxication, diabetic coma, stroke, Multiple sclerosis, Amyotrophic lateral sclerosis (ALS) or other…in which case they may not get the immediate and targeted attention that they most need.

It’s therefore hoped that YOU, dear readers, spring into immediate action if at all in doubt.

1) Call 911 and wait with WD and UW until help arrives.  Show medics the ! Medical Alert Card ! and describe the situation if WD and UW are unable to do so for themselves.

2) Call the emergency contact numbers on the back of their ! Medical Alert Card !

3) If the myasthenia exacerbation / flare has not yet reach crisis proportion — at which point Wendy and UnderWoman may be unable to breathe on their own and require immediate intubation — they may be taken to the closest Emergency Department.

a) In suburban Maryland, Suburban Hospital — 301.896.3880, 8600 Old Georgetown Road. Bethesda, MD 20814

b) In Baltimore, The Johns Hopkins Hospital — 410.955. 2280, 1800 Orleans St., Baltimore, MD 21287

c) In NYC, New York-Presbyterian / Columbia ED — 212.305.6204, 630 W. 168th St., NY, NY  10032

FYI:  Though they have received many requests, Wendy and UnderWoman’s ! MEDICAL ALERT ! cards are not yet for sale.

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If you or someone you know, would like to be as prepared In Case of Emergency as Wendy and UnderWoman strive to be, please visit ICEinfo.org and consider joining the ICEinfo Registry.

Warmly and with THANKS,

Wendy Dubit, UnderWoman and Team Lucky Breaks
wendy@wonderworksproductions.com

IN CASE OF EMERGENCY…. Be PREPARED Not Scared